I started this blog as I wanted a place to write about help for halo wearers when my daughter had to wear one twice in 2014. Since then, I have become disabled and my daughter has ongoing problems. I am now using this blog to share our experiences throughout our journey through this life that has chosen us. You will find all kinds of information on our many conditions and ailments. We are zebras in the medical world, United here in our space on the internet.
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Too Much and not Enough
As you may recall I told you that Lucy has a syringomyelia and I've been getting advice from a neurologist who is not Lucy's doctor...
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Last year we had a letter from the school about a residential trip that is taking place in February. I threw the letter away, my first inst...
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Yesterday it was Lucy's scheduled catheter change. She wasn't too happy but she knew it had to be done. She stayed in bed until the...
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As you may recall I told you that Lucy has a syringomyelia and I've been getting advice from a neurologist who is not Lucy's doctor...
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