As you may recall I told you that Lucy has a syringomyelia and I've been getting advice from a neurologist who is not Lucy's doctor. She thinks it would be better to ask for Lucy to be referred back to the Children's hospital as the waiting list is a lot shorter, so I'm going to contact them and see if this is possible.
Then I get more information on syringomyelia. It's a neurological order where CSF (cerebrospinal fluid) causing a fluid filled cyst on the spinal cord, a syrinx. Apparently Lucy has two and they were picked up on her MRI. They can be harmless and never detected, but if they cause problems then they need to be treated.
Lucy has problems as we know. Things that can be cause by syringomyelia which Lucy currently suffers from are:
- pins and needles
- bladder problems
- bowel problems
- weakness in limbs
- stiffness in limbs and neck
- loss of balance